A true mixed bag of fun...
What exactly am I talking about, you ask?
MS.
Somedays I wake up with my hands completely all pins & needles, others it's both arms with no feeling at all.
Sometimes I stumble when I try to walk, talk, move etc.
Others I wake up feeling like I could run a marathon in
'make believe fat people can jog too' world.
(and no we don't all wear spandex there...)
It's silly cuz it's shitty & uneventful & frusterating & invisible to the average 'people watcher', but it's here, like it or hate it... it's mine.
Subcutaneous weekly shots & all.
This bad boy's all mine.
Short term memory loss,
constant feeling being overheated,
drinking water so much that I must pee a zillion times a day...
the list goes on.
On days when I actually use my handicapped placard for parking, and people watch me get out of the car without assistance and walk 'somewhat normally' into wherever it is I was headed, I feel their stare upon me. Feel them silently judging me based soley on appearances.
Probably thinking to themselves:
"Ugh, look at her! She isn't handicapped! She's probably just too lazy from being fat so she parks there. I hate those people!"
And then I carefully mount my placard atop the rearview mirror & all their silent judgemental thoughts they so quickly formed of me begin to slowly drip off their guilt ridden faces with a snails pace as they desperately try to avoid my gaze.
Shame on them.
Shame on everone who judges another in haste, just because.
Is their life so perfect that they can stand there & judge mine?
No, it's not.
Did they think for a second that maybe, just maybe, I've made monumental achievments in my 34 years so far? That perhaps maybe this 'fat girl' used to be much heavier but actually got off my ass enough to drop 80lbs?
Probably not.
Because that would require them to use those brain cells
they wasted on the cheap pot their friends sold them.
God forbid.
Nope, people are unfortunately creatures of habit & some things undoubtedly never change.
What does change, however, is my beautiful little girl.
I was watching Ruby play today, as she does every day, by running around the house, giggling, kissing (making out with) Bear, stacking blocks, doing puzzles, bringing me book after book to read, the typical daily moments of a not so typical toddler.
She smiled about a million times, she held my hand on & off just because & without being prompted from me.
She talks a blue streak when she thinks I'm not within ear shot, she loves to have 'white trash onesie time' while wearing only her ladybug rain boots & a smile.
(I love white trash onsie time, someday I'll capture it in a photo...)
She eats salad and meatloaf & loves mashed potatos and pickles...
... and she's my daughter.
All that beautiful, wonderful, amazing person is in this perfectly adorable package otherwise known as Ruby Cate.
I see her play & wonder to myself, "how long before she starts to notice when Momma stumbles on her steps or her words or her movement?
Will it matter to her that other children in the world have two parents instead of just one, like her?
Will it matter to her that her Momma has MS and other childrens Momma's are 'normal' ?
(an ugly little word I hate but we'll use it for now since it's late and I don't have the energy to make clever substitutions at the moment...)
If I teach Ruby nothing else, I hope to God I teach her self love, & acceptance & respect for herself & for others. Regardless of how they appear on the outside.
Everyone has a story to tell.
She'll have hers & I hope one day she'll learn
to sit still long enough to listen to someone else tell theirs.
I want her to know that you never judge a person till you've walked a mile in their shoes, and that to laugh is the best medicine there is.
I'm just afraid for the moment that once I make such a comment, she'll come back with:
"Momma, if laughter is the best medicine, then why isn't your MS going away?
We laugh all the time!"
If it were only that simple baby girl...
Momma would make it so.
This post is to remind everyone to think before you judge, or better yet, don't judge at all.
Life is too short for stupid shit like that... just smile alot,
stop & smell the flowers, do a random act of kindness just because, and treat others the way you want to be treated.
So, tonight, MS is my story... what's yours?
And no chance at saying you don't have one, because I just said, we ALL have a story to tell...
So, be brave because I want to hear some of yours!
So, find your courage, take a deep breath & click that comment button & share a piece of yourself...
(I'll go get the popcorn...)